The Governor's DD Council - Quick Reference List

Iowa Resources

Alliance for the Mentally Ill
Iowa Association of the Deaf The Arc of Iowa Autism Society of Iowa Brain Injury Association of Iowa
Center for Disabilities and Development Respite Care Disability Resource Library
Division of Persons with Disabilities Easter Seals Family Support Subsidy Iowans with Disabilities Exercising Advocacy Skills Iowa Association of Community Providers
Iowa Centers for Independent Living Black Hawk Center for Independent Living Central Iowa Center for Independent Living Text Only Version Graphics Version Illinois/Iowa Center for Independent Living South Central IA Center for Independent Living Three Rivers Independent Living Center
Iowa COMPASS
Iowa Department of Human Services
Iowa Federation of Families for Children's Mental Health Iowa General Assembly and Iowa Law Iowa Program for Assistive Technology (IPAT) Iowa Protection & Advocacy Services, Inc. Iowa Respite & Crisis Care Coalition Iowa Training Consortium
Iowa's University Ceter for Excellence Program (formerly Iowa University Affiliated Program)
Parent Training/Information Center & ASK Resource
Realizing Educational & Career Hopes (R.E.A.C.H.) Social Security Administration
US Senate and House of Representatives:
US Senate Home Page
US House of Representative Home Page

Alliance for the Mentally Ill
Provides support and information to families, friends, and individuals with a mental illness.

5911 Meredith Drive, Suite C-1
Des Moines, IA 50322

Phone: 1-800-417-0417 or ( 515 ) 254-0417
FAX: ( 515 ) 254-1103
E-mail: AMIiowa@aol.com

Iowa Association of the Deaf
A state organization of, by and for the deaf. The Iowa affiliate of the National Association of the Deaf (NAD)

FAX: 515-278-6384
TTY: 515-278-6382
Web site: http://www.iowadeaf.org

The Arc of Iowa
A statewide advocacy organization of parents and others representing people with mental retardation and other disabilities.

P.O. Box 1096
Cedar Rapids, IA 52406

Phone: 1-800-362-2927 or ( 319 ) 365-9938
E-mail: ArcIowa@arceci.org

Autism Society of Iowa
An advocacy organization for Iowans with Autism.

4549 Waterford Drive
West Des Moines, IA 50266

Phone: 1-888-722-4799 or ( 515 ) 327-9075
E-mail: autism50ia@aol.com
Web site: www.autismia.org

Brain Injury Association of Iowa
An advocacy organization representing people with brain or head injury.

Phone: 1-800-475-4442 or ( 319 ) 272-2312
FAX: ( 319 ) 272-2109

Center for Disabilities and Development Respite Service
The Center for Disabilities and Development Respite Service offers short-term, temporary respite care for people with disabilities. The care is year 'round, 24 hours a day, seven days a week on a space-available basis. Advance notice is preferred, but in some situations, care may be arranged with only a few hours' notice.

People of all ages, with a wide range of disabilities, including people with severe, multiple disabilities, can use the service. It is also available for individuals who:

have affective disorders but are on stable medication;
have asthma;
have behavior disorders but currently have an effective treatment plan;
have diabetes with stable blood sugar and eating patterns;
are totally dependent;
require PO (by mouth) feeding;
need gastrostomy or NG-tube feeding;
need catheterization;
have seizures;
need ventilator care; or
are not expected to require emergency care.

The service is not available for individuals who are actively suicidal, likely to run away, criminally violent or aggressive, or subject to unpredictable manic episodes.

For more information please contact:

Center for Disabilities and Development
100 Hawkins Drive
Iowa City, IA 52242-1011

Phone: ( 877) 686-0031
TTY: ( 877) 686-0032
Local: (319) 353-6915
E-mail: cdd-scheduling@uiowa.edu

Disability Resource Library
A lending library of books, videotapes, and other resources on disability issues: free for people with disabilities and family members. Other people, organizations, and agencies may purchase yearly subscriptions or may pay per item.

Center for Disabilities and Development - 331 CDD
University of Iowa Hospital and Clinics, 100 Hawkins Drive
Iowa City, IA 52242-1011

Phone: 1-800-272-7713
FAX: ( 319 ) 353-6532
E-mail: disability-library@uiowa.edu
Web Site: www.uihealthcare.com/cdd

Division of Persons with Disabilities
The Division of Persons with Disabilities exists to promote the employment of Iowans with disabilities and reduce barriers to employment by providing information, referral, assessment and guidance, training, and negotiation services to employers and Iowans with disabilities

Phone: 1-888-219-0471 (voice/TTY)
FAX: ( 515 ) 242-6119
E-mail: dhr.disabilities@dhr.state.ia.us
Web Site: www.state.ia.us/government/dhr/pd/index.html

Easter Seals
Easter Seals is a community-based organization that provides programs, advocacy, education and support to people who have disabilities, their families and communities.

P.O. Box 4002
Des Moines, IA 50333

Phone: ( 515 ) 309-1783
TTY: ( 515 ) 274-8348
FAX: ( 515 ) 289-1281
E-mail: info@eastersealsia.org
Web Site: http://ia.easterseals.com

Family Support Subsidy
A monthly payment to help defray the costs of keeping a child with special needs at home. The family's net income must be under $40,000 per year. There is a waiting list.

Apply through DHS.
Phone: ( 800 ) 972-2017

Iowans With Disabilities Exercising Advocacy Skills (IDEAS)
A statewide self-advocacy and leadership training program; supports grass-roots self-advocacy groups and advocates for systemic change. (Not to be confused with the federal education act, IDEA.)

Center for Disabilities and Development - 140A CDD
100 Hawkins Drive
Iowa City, IA 52242-1011

Phone: ( 319 ) 353-6448
FAX: ( 319 ) 356-8284
E-mail: michael-hoenig@uiowa.edu

Iowa Association of Community Providers
An association of agencies providing a variety of services to Iowans with disabilities.

7025 Hickman Road
Urbandale, IA 50322

Phone: ( 515 ) 270-9495
FAX: ( 515 ) 270-1035

Iowa COMPASS
A free information and referral service for Iowans with disabilities and their families. Provides information over the phone, by mail, or on audio cassette about agencies and organizations that serve Iowans with disabilities.

Center for Disabilities and Development - S295 CDD
100 Hawkins Drive
Iowa City, IA 52242-1011

Voice/TTY: 1-800-779-2001
FAX: ( 319 ) 384-5139
E-mail: iowa-compass@uiowa.edu
Web Site: www.iowacompass.org

Iowa Federation for Children's Mental Health
A statewide family advocacy organization assisting families who have children and youth with behavioral, emotional, and mental challenges.

Lori Reynolds, Executive Director
106 South Booth
Anamosa, Iowa 52205
Phone: (319)462-2187
Toll free: 1-888-400-6302
E-mail: lori@iffcmh.org
Web site: www.iffcmh.org

Iowa Program for Assistive Technology (IPAT)
Provides information about the availability of assistive technology devices, where to obtain them, cost, dealers and vendors, where to obtain financial assistance, etc.
Newsletter: InfoTech

Center for Disabilities and Development - S295 CDD
100 Hawkins Drive
Iowa City, IA 52242-1011

Phone: 1-800-331-3027 or ( 319 ) 356-4382
Web Site: www.uiowa.edu/infotech/

Iowa Protection & Advocacy Services, Inc.
Protects the human and legal rights of people with physical disabilities and mental illness in Iowa.

950 Office Park Road, Suite 221
West Des Moines, IA 50265

Phone: 1-800-779-2502 or ( 515 ) 278-2502
TTY: ( 515 ) 278-0571
FAX: ( 515 ) 278-0539

Iowa Respite & Crisis Care Coalition
IRCCC is a parent-driven, non-profit organization that provides referral, advocacy, information, and limited funding for respite/crisis care services.

3821 - 71st Street, Suite A
Urbandale, IA 50322

Phone: 1-877-255-3140 or ( 515 ) 309-0858
E-mail: ed@irccc.com
Web Site: www.irccc.com

Iowa University Center for Excellence on Disabilities
Promotes the independence, productivity, and community inclusion of individuals with developmental disabilities through a broad range of training, service, technical assistance, and information sharing activities.

Center for Disabilities and Development - 225 CDD
University of Iowa Hospital and Clinics, 100 Hawkins Drive
Iowa City, IA 52242-1011

Phone: ( 319 ) 356-1335
FAX: ( 319 ) 356-8284
E-mail: robert-bacon@uiowa.edu
Web Site: http://www.healthcare.uiowa.edu/cdd

Parent Training and Information Center of Iowa (PTI) and ASK Family Resource Center
The center works closely with educators, other service professionals and all concerned citizens to achieve the aims of the Individuals with Disabilities Education Act (IDEA) of 1997.

321 East 6th Street
Des Moines, IA 50309-1903

Phone: 1-800-450-8667 or ( 515 ) 243-1713
FAX: ( 515 ) 243-1902
E-mail: info@askresource.org
Web Site: http://www.askresource.org

R.E.A.C.H.
A program at the University of Iowa for young adults with multiple learning and cognitive disorders. R.E.A.C.H. is a two-year certificate program that combines academic instruction, career experiences, community involvement, and residential life to creat a dynamic collegiate experience.

Phone: (319) 384-2127
E-mail: reach@uiowa.edu
Web Site: http://www.education.uiowa.edu/reach

Social Security Administration
(U.S. Department of Health and Human Services)
Offers assistance on Social Security and Supplemental Security Income (SSI).

Phone: 1-800-772-1213
TTY: 1-800-288-7185
Web Site: http://www.ssa.gov/SSA_Home.html

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