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Frequently Requested Resources for Iowans with Disabilities & Family Members



*    Alliance for the Mentally Ill
*    The Arc of Iowa
*   Autism Society of Iowa
*   Brain Injury Association of Iowa
*   Disability Resource Library
*   Easter Seals
*   Family Support Subsidy
*    Iowans with Disabilities Exercising Advocacy Skills
*    Iowa Association of Community Providers
*   Iowa COMPASS
*   Iowa Family Support Subsidy (IFSI)
*   Iowa Program for Assistive Technology (IPAT)
*   Iowa Protection & Advocacy Services, Inc.
*    Iowa Respite & Crisis Care Coalition
*    Iowa State Association of Counties (ISAC)
*    Iowa University Affiliated Program (UAP)
*   Parent Training and Information Center of Iowa (PTI)
*   Social Security Administration
*   Social Security Work Incentives Specialists
*   Special Needs Grants
*   The Legal Center for Special Education
*   Center for Disabilities and Developmental Respite Service (formerly University Affiliated Program)


Alliance for the Mentally Ill
Provides support and information to families, friends, and individuals with a mental illness.

5911 Meredith Drive, Suite C-1
Des Moines, IA 50322

Phone: 1-800-417-0417 or ( 515 ) 254-0417
FAX: ( 515 ) 254-1103
E-mail: AMIiowa@aol.com

The Arc of Iowa
A statewide advocacy organization of parents and others representing people with mental retardation and other disabilities.

715 E. Locust Street
Des Moines, IA  50309

Phone: 1-800-362-2927 or ( 515 ) 283-2358
FAX: ( 515 ) 244-4948
E-mail: ArcIowa@aol.com

Autism Society of Iowa
An advocacy organization for Iowans with Autism.

3135 Spring Valley Road
Dubuque, IA  52001

Phone: 1-888-722-4799 or ( 319 ) 557-1169
E-mail: autism50ia@aol.com

Web site: www.autismia.org

Brain Injury Association of Iowa
An advocacy organization representing people with brain or head injury.

Phone: 1-800-475-4442 or ( 319 ) 272-2312
FAX: ( 319 ) 272-2109

Center for Disabilitites and Development Respite Service
The Center for Disabilities and Development Respite Service offers short-term, temporary respite care for people with disabilities. The care is year 'round, 24 hours a day, seven days a week on a space-available basis. Advance notice is preferred, but in some situations, care may be arranged with only a few hours' notice.

People of all ages, with a wide range of disabilities, including people with severe, multiple disabilities, can use the service. It is also available for individuals who:

  • have affective disorders but are on stable medication;
  • have asthma;
  • have behavior disorders but currently have an effective treatment plan;
  • have diabetes with stable blood sugar and eating patterns;
  • are totally dependent;
  • require PO (by mouth) feeding;
  • need gastrostomy or NG-tube feeding;
  • need catheterization;
  • have seizures;
  • need ventilator care; or
  • are not expected to require emergency care.

The service is not available for individuals who are actively suicidal, likely to run away, criminally violent or aggressive, or subject to unpredictable manic episodes.

For more information please contact Lori Hilmer, Respite Service Center for Disabilities and Development - 142 CDD
University of Iowa Hospitals and Clinic - 100 Hawkins Drive
Iowa City, IA  52242-1011

Phone: ( 877) 686-0031
TTY: ( 877) 686-0032
Local: (319) 353-6915
E-mail: lori-hilmer@uiowa.edu

Disability Resource Library
A lending library of books, videotapes, and other resources on disability issues: free for people with disabilities and family members. Other people, organizations, and agencies may purchase yearly subscriptions or may pay per item.

Center for Disabilities and Development - 331 CDD
University of Iowa Hospital and Clinics, 100 Hawkins Drive
Iowa City, IA  52242-1011

Phone: 1-800-272-7713
FAX: ( 319 ) 356-1343
E-mail: disability-library@uiowa.edu
Web Site: www.uiowa.edu/uhs/drlmain.html

Easter Seals
Easter Seals is a community-based organization that provides programs, advocacy, education and support to people who have disabilities, their families and communities.

P.O. Box 4002
Des Moines, IA  50333

Phone: ( 515 ) 289-1933
TTY: ( 515 ) 290-4069
FAX: ( 515 ) 289-1281
E-mail: ESSIA@netins.net

Family Support Subsidy
A monthly payment to help defray the costs of keeping a child with special needs at home. The family's net income must be under $40,000 per year. There is a waiting list.

Apply through Carmen Bratz at DHS.
Phone: ( 515 ) 281-5338
E-mail: cbratz@dhs.state.ia.us

Iowans With Disabilities Exercising Advocacy Skills   (IDEAS)
A statewide self-advocacy and leadership training program; supports grass-roots self-advocacy groups and advocates for systemic change. (Not to be confused with the federal education act, IDEA.)

Center for Disabilities and Development - 140A CDD
100 Hawkins Drive
Iowa City, IA  52242-1011

Phone: ( 319 ) 353-6448
FAX: ( 319 ) 356-8284
E-mail: michael-hoenig@uiowa.edu

Iowa Association of Community Providers
An association of agencies providing a variety of services to Iowans with disabilities.

7025 Hickman Road
Urbandale, IA  50322

Phone: ( 515 ) 270-9495
FAX: ( 515 ) 270-1035
E-mail: LDFrost@worldnet.att.net

Iowa COMPASS
A free information and referral service for Iowans with disabilities and their families. Provides information over the phone, by mail, or on audio cassette about agencies and organizations that serve Iowans with disabilities.

Center for Disabilities and Development - S295 CDD
100 Hawkins Drive
Iowa City, IA  52242-1011

Voice/TTY: 1-800-779-2001
FAX: ( 319 ) 356-1343
E-mail: iowa-compass@uiowa.edu
Web Site: www.medicine.uiowa.edu/iowacompass

Iowa Family Support Initiative (IFSI)
A statewide, grass-roots organization of parents of children with all types of disabilities who want their children to live at home and be a part of our communities and everyday lives.

321 East 6th Street
Des Moines, IA  50309

Phone: ( 515 ) 280-6558
E-mail: IFSI30145@aol.com

Iowa Program for Assistive Technology (IPAT)
Provides information about the availability of assistive technology devices, where to obtain them, cost, dealers and vendors, where to obtain financial assistance, etc.
Newsletter: InfoTech

Center for Disabilities and Development - S295 CDD
100 Hawkins Drive
Iowa City, IA  52242-1011

Phone: 1-800-331-3027 or ( 319 ) 356-4382
Web Site: www.uiowa.edu/infotech/

Iowa Protection & Advocacy Services, Inc.
Protects the human and legal rights of people with physical disabilities and mental illness in Iowa.

3015 Merle Hay Road
Des Moines, IA  50310

Phone: 1-800-779-2502 or ( 515 ) 278-2502
TTY: ( 515 ) 278-0571
FAX: ( 515 ) 278-0539

Iowa Respite & Crisis Care Coalition
IRCCC is a parent-driven, non-profit organization that provides referral, advocacy, information, and limited funding for respite/crisis care services.

317 E. Sixth Street
Des Moines, IA  50309

Phone: 1-877-255-3140 or ( 515 ) 255-3093
E-mail: jbrewer@irccc.com

Web Site: www.irccc.com

Iowa State Association of Counties (ISAC)
The association that represents county government, the major funder of services to adults with disabilities.

701 E. Court Ave.
Des Moines, IA 50309

Phone: (515) 244-7181
FAX: (515) 244-6397
E-mail: ISAC25@aol.com
Web Site: www.iowacounties.org

Iowa University Center for Excellence on Disabilities
Promotes the independence, productivity, and community inclusion of individuals with developmental disabilities through a broad range of training, service, technical assistance, and information sharing activities.

Center for Disabilities and Development - 225 CDD
University of Iowa Hospital and Clinics, 100 Hawkins Drive
Iowa City, IA  52242-1011

Phone: ( 319 ) 356-1335
FAX: ( 319 ) 356-8284
E-mail: robert-bacon@uiowa.edu
Web Site: http://www.medicine.uiowa.edu/uhs

Parent Training and Information Center of Iowa   (PTI)
The center works closely with educators, other service professionals and all concerned citizens to achieve the aims of the Individuals with Disabilities Education Act (IDEA) of 1997.

321 East 6th Street
Des Moines, IA  50309-1903

Phone: 1-800-450-8667 or ( 515 ) 243-1713
FAX: ( 515 ) 243-1902
E-mail: ptiiowa@aol.com
Web Site: http://www.iowapti.org

Social Security Administration
(U.S. Department of Health and Human Services)
Offers assistance on Social Security and Supplemental Security Income (SSI).

Phone: 1-800-772-1213
TTY: 1-800-288-7185
Web Site: http://www.ssa.gov/SSA_Home.html

Social Security Work Incentives Specialists
Provides assistance with social security programs while individuals move towards self-sufficiency. Please call the Governor's DD Council for up-to-date referrals to Iowa's specialists.

Special Needs Grants
Provides grants to Iowans with developmental disabilities to purchase equipment to increase independence.

Phone: ( 515 ) 270-2205 Ext. 141

The Legal Center for Special Education (TLC)
The Center provides effective, low-cost, and readily available legal and advocacy services for parents of children with disabilities across Iowa. TLC focus is on issues concerning the educational rights of children with disabilities.

317 East 6th Street
Des Moines, IA  50309-1903

Phone: 1-866-250-4545 or ( 515 ) 309-0033
FAX: ( 515 ) 309-0035
E-mail: tlciowa@mcleodusa.net


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